Sunday, February 17, 2008

Charles in Charge

What She Wore: Gray running pants; red t-shirt that a former student gave me; tennis shoes.

What She Ate: Pot roast and potatoes made by the Hub; macaroni and cheese from a Southern Living Cook Book; green beans with tomatoes and andouille--that recipe is also the Hub's. He should write a cookbook or something.

Well, I forgot to say anything, but we've started tapering off of Charlie's medicine. Yippee! We're still on house arrest, but the end is in sight. Truthfully, I'm not exactly sure what we're going for, but hopefully his next EEG will look "better." I don't know what "better" will look like (not being a nuerologist and all), but feel free to say a prayer if you're the type.

Charlie, on the other hand, is blissfully unaware that his nuero is concerned. He's just doing his thing. He WANTS to crawl so badly. Put him on his stomach and he's wiggling like he wants to commando crawl. He might even gain the tiniest amount of ground, but he's not really strong enough. He's also holding the table position briefly. Who knows how long it will be before he puts it all together, but it's fun watching him try.

They've found him a physical therapist as well. He'll probably start with her in March. Meanwhile, the OT has big plans for my little man. Here are some of the things she'd like to do:

She wants him to start in a stander once he begins PT.

She's also ordered a thumb splint to help hold out one of his thumbs--he keeps it tucked under.

She would like to order him something called hipsters which will keep his knees together. Hopefully, this will help keep his hamstrings less tight.

She wants to order some shoe inserts for when he starts practicing standing and walking. I guess that means I'll have to buy him some shoes too.

Finally, she wants to have a new swallow study done. She wants to see if he needs someone to help him work on eating solids, and she wants to know if he still needs to have his liquids thickened. I'm not getting my hopes up, but I feel like he's gotten a lot better with that, so who knows. . .

As far as my own goals for Charlie, we're still working on using his hands in play. Things are improving in this area as well. We've finally got him playing his little piano. He would still rather someone else do it for him, but even a little progress is progress.

We're keeping my boy busy, but like they say, "He writes his own book."